Long Term Care Residents’ Advocacy Organizations
Albany Guardian Society
Its mission is to engage in a wide range of activities including education, research, information, and community engagement that will improve the quality of life for seniors, their families, and caregivers in the Capital Region.
American Bar Association Commission on Law and Aging
The Commission secures and strengthens the legal rights, dignity, autonomy, quality of life and quality of care of older adults through research, policy development, advocacy, education, training and through assistance to lawyers, bar associations and others working on aging issues.
Capital Region Villages Collaborative
Villages are self-governing, grassroots, membership, nonprofit organizations run by volunteers, and sometimes paid staff, that coordinate access to a variety of services and activities for seniors wanting to maintain independence in their own home.
Center for Elder Law and Justice
Provides free civil legal services to seniors, people with disabilities and low-income populations in Western New York. Their goal is to protect the essentials of life such as housing, income, access to healthcare and protection from abuse. Some of their services include: health care advocacy, elder abuse prevention, housing and consumer protection.
Center for Medicare Advocacy
The Center for Medicare Advocacy is a national, non-profit, law organization that works to advance access to comprehensive Medicare coverage, health equity, and quality health care for older people and people with disabilities. Its work includes legal assistance, advocacy, education, analysis, policy initiatives, and litigation of importance to Medicare beneficiaries nationwide.
Coalition of Institutionalized Aged & Disabled
The Coalition of Institutionalized Aged and Disabled (CIAD) is a non-profit, grassroots organization run by and for adult home and nursing home residents and resident councils, dedicated to protecting the rights of residents and improving the quality of their life and care. It is governed by a Board of Directions, largely composed of residents in the NYC area.
The Consumer Voice is the leading national voice representing consumers in issues related to long-term care and a primary source of information and tools for consumers, families, caregivers, advocates and ombudsmen to help ensure quality care for the individual.
Disability Rights New York
DRNY is a Protection and Advocacy System and Client Assistance Program for persons with disabilities. DRNY advocates for the civil and legal rights for New Yorkers with disabilities. DRNY provides free legal and advocacy services to individuals with disabilities and works to protect and advance the rights of children and adults with disabilities.
Family Service League in Suffolk County
Family Service League (FSL) helps individuals, children, and families on Long Island to mobilize their strengths and improve the quality of their lives at home, in the workplace, and in the community. FSL assists with seniors seeking companionship, homeless seeking shelter, and provides assistance to those suffering from addiction and mental illness.
Independent Consumer Action Network (ICAN)
Independent Consumer Action Network (ICAN) provides information about Medicare and Medicaid programs for people receiving long-term care, such as home care or nursing home care.
Justice in Aging
Justice in Aging focuses on advocacy, training, and litigation on health care and economic security with the goal of having an impact on the lives of low-income seniors.
Long Term Care Community Coalition
LTCCC is a nonprofit organization which works to improve the quality of care, quality of life and dignity for elderly and disabled people in nursing homes, assisted living, and other residential settings. LTCCC focuses on systemic advocacy by researching national and state policies, laws and regulations to identify relevant issues and develop recommendations to improve quality, efficiency, and accountability. LTCCC then uses this research and recommendations to educate policymakers, consumers, and the general public.
Long Term Care Ombudsman Program
New York’s LTCOP is a resource for older adults and people with disabilities who live in nursing homes, assisted living, and other licensed adult care homes. The program provides information and consultation to residents, families, facility staff, and community about issues in long term care and specific issues they are experiencing in facilities, advocates on behalf of residents to assure rights are not violated, identifying, and investigating and working towards resolution of resident complaints.
Mental Hygiene Legal Services
The Mental Hygiene Legal Service (MHLS) is a New York State agency responsible for representing, advocating and litigating on behalf of individuals receiving services for a mental disability under the care or jurisdiction of State-operated or licensed facilities. It also provides protective legal services and assistance in proceedings under the Mental Hygiene Law (MHL) Article 81 Guardianship and most of the MHL Assisted Outpatient Treatment.
Mobilization for Justice
Offers free legal assistance to low-income New Yorkers throughout New York City. Some of their legal areas include: housing; foreclosure; civil, disability, and aging rights; bankruptcy, tax, consumer, employment, government benefits; immigration; and kinship care. Their goals include: prevent homelessness, help seniors and people with disabilities live independently, stabilize families, maintain and increase income, and address racial disparities.
Nassau-Suffolk Law Services
Nassau-Suffolk Law Services provides free legal services for civil matters to people with low incomes or disabilities on Long Island. Some services include applications for Medicaid, SNAP, SSI, and temporary shelter. It also provides extensive community education and outreach.
National Association of Nursing Home Attorneys
The National Association of Nursing Home Attorneys (NANHA) works to protect the rights of older adults by using the skills and expertise to address nursing home abuse through civil and criminal law.
New York Association for Independent Living
New York Association for Independent Living (NYAIL) is a not for-profit, non-government membership organization composed of, Independent Living Centers (ILCs) throughout New York State. NYAIL advances the independence of New Yorkers with disabilities through advocacy, education, resources, referral and the exchange of information.
Other Resources & Self-Help Information
American Bar Association Commission on Law and Aging, Health Care Advance Planning Packet
This tool kit contains a variety of self-help worksheets, suggestions, and resources which provide guidance for advance health care decision-making.
A searchable federal nursing home website.
Caregiver Resources & Long-Term Care
This resource offered by the U.S. Department of Health and Human Services includes links for national caregiver support program; eldercare locator; alternatives to nursing homes; health information counseling and more.
Elder Care Locator
This resource, a public service of the federal Administration on Aging, includes links for national caregiver support program; eldercare locator; alternatives to nursing homes; health information counseling and more.
Mobilization for Justice Nursing Home Resident Guides
Also see MFJ’s useful guides on Medicaid, Adult Home Residents’ rights, and other topics in this self-help list.
National Partnership – Dementia Care Resources
The National Partnership to Improve Dementia Care in Nursing Homes (the National Partnership) provides resources to assess the quality of care for individuals with dementia, living in nursing homes. It provides a list of dementia care resources by category
New York State Bar Association Webinars
Webinar programs on a variety of issues relating to long term care.
New York State Office for the Aging
The New York State Office for the Aging identifies and connects individuals with programs and services relating to caregivers, housing, health, employment, transportation, elder abuse, food and meals, and veterans.
NY Connects - Find Local Offices
NY Connects provides one stop access to free, objective, comprehensive information and assistance on long term services and supports for people of all ages or with any type of disability. NY Connects programs are located across the state. A listing of each local program can be found through the website.
ProPublica’s Nursing Home Inspect
A searchable website to compare nursing homes based on the deficiencies cited by regulators and the penalties imposed in the past three years, as well as trends and patterns.
U.S. Department of Veterans Affairs; also here
Older veterans may be eligible for a wide-variety of benefits available to all U.S. military Veterans, including disability compensation, pension, education and training, health care, home loans, insurance, Veteran Readiness and Employment, and burial.